look what i found...

While going through paperwork, I found an appointment (i had forgotten about) for Drew to go to the IWK on the 22nd to see Dr. Robert LaRoche (ophthalmology). Part of Drew's possible Marfan's condition is that his retina might become detatched.

Marfan's Syndrom:

"The Marfan syndrome is a heritable condition that affects the connective tissue. The primary purpose of connective tissue is to hold the body together and provide a framework for growth and development. In the Marfan syndrome, the connective tissue is defective and does not act as it should. Because connective tissue is found throughout the body, the Marfan syndrome can affect many body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs."

I found this about retinal detachment: " A retinal detachment occurs when the retina is pulled away from its normal position in the back of the eye. The retina sends visual images to the brain through the optic nerve. When detachment occurs, vision is blurred. A detached retina is a very serious problem that almost always causes blindness unless it is treated. "

My ex-husband was diagnosed 5 years ago with Marfans and recieved an aortic root and valve replacement during which the Heart Surgeon gave him a mechanical valve.

It is possible that both Drew and Haven have this condition. Drew goes for heart tests every year and more recently had an MRI. Haven is tall and thin and her wingspan is suspicious.

People with Marfans are not supposed to be allowed to play contact sports. So starting this summer, I believe that Drew is going to have his first taste of "golfing"...

My Dad is a fantatsic golfer... i might even try golfing myself...

:)